Just tired...still battling the health mystery but Good news too!

I am tired and Down. 
Overwhelmed. It happens, to all of us, I realize. But I am gently grumbling today to release as well as to let you know why I haven't been writing or communicating much recently. Lately my hands have been in such pain I haven't been able to do much with them. The largest crisis in my mind....is that I haven't been able to create my artwork which provides peace, time with God and respite for me.
GOOD news! 
I recently went to a hand specialist at Duke. He immediately discovered that I have trigger finger with both thumbs, gave me 4 grueling shots in both and declared that it might help the rest of my fingers! We will deal with the wrist and other bone pain next, he said. Possible surgery. But the simple idea of a doctor telling me that he can actually fix something on my body was so amazing that I even asked him to repeat it! I'm so very used to hearing, "I don't know what to tell you." OR "Oh, you need a different specialist for THAT, it's not my area!"

 

















More GOOD news! 
My clots are finally calming way down! Both legs were swollen 3 times bigger than normal and were behaving like camelions! Hot red one moment, dusky gray-purple the next. And I'm talkin' all the way up to my rear-end! Apparently that is venous congestion. And my fear of anything touching my legs even slightly was scary because the pain was so intense. The swelling for the most part is gone. Less pink fuzzy slippers for me and more Birkenstock's! Much happier. Best news of all, I think I am past the point where the clots can travel!!
Even MORE GOOD news!
I've lost 16 lbs being off the Dexamethasone! Still have a beard. But don't seem to look like the poster child for Cushings disease anymore! By the way, did I comment, ever, that I am one in a MILLION a year to get that??!!! HHHMMMMNNN.
Quick, simple update. (Without details!)
They are referring me to a specialist in Charlotte. It's been 4 weeks now, I called them to see what the status was and the lady said, "Honey, let me call you back, it will take days just to find you in the stack of referrals!" That was a week ago.
Meanwhile my PT made a huge discovery. Yes, I have joint pain from arthritis, but the intense chronic pain is in my BONES. Good to know. So more tests, different path. Good news they immediately did blood work related to bone cancer-doesn't look like I have that.
My new pain patch barely works. I refuse to let them bump it up. More biopsies. Ongoing. 
Sad.
My husband had to start putting handicapped stuff in the house. My beautiful glamorous bathroom now looks sad and pitiful. But I am trying so hard to be thankful that we even have these devices where we live. Something for me to mourn about never the less (even for just a bit.) I am also learning that I need to have more grace and compassion for handicapped people.

Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.

Philippians 4:6-7NKJV

Fun stuff!
Left side, my Polly! As you see, her nickname is "Licky!" She licks outlets, clothing, the air, you name it!

Bottom left, I found my long lost cross that Jason bought me last September on a special trip just the two of us went on!

Bottom right, we went to Calvary's spring baptism which is the best party I can imagine attending!! So much joy permeating the air that just blessed my soul and reminded me why we are here on this earth to begin with! Excitement filled the air. Everyone's faces lit up and glowed at the sight of more people pronouncing their love for Jesus!

... in everything give thanks; for this is the will of God in Christ Jesus for you. 

1 Thessalonians 5:18 NKJV



Have a blessed week!!
Reach out to me,  talk to me, give me your story on comments below or personal FB me or contact me at jandjemery@gmail.com
We are NOT alone in pain!

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